The first time I remember somebody asking me what I wanted to 'be' when I grew up, I was at my grandparents' house. I was scribbling away in a composition book that I was determined to turn into a chapter book (with pictures of course) when my grandma asked, and I told her I wanted to be a children's book illustrator. Yeah, my family got a big kick out of that one. Only I would pick such a specific, somewhat obscure career choice at six years old.
I went through a few more stages. Military, lawyer, military lawyer (what? I really loved JAG!), teacher, run my own daycare, own my own baby supply store, and ultimately I even went to college and got a degree in public health, as I liked to put it, "because I want to get paid to play with car seats when I grow up."
In the meanwhile I worked a few different jobs. I worked in daycare - taught preschoolers. I worked for the health department, the only job I ever had that actually fell into my field of study in college. I was a home health aide for a while, and then a nanny. When I quit that last job (which was more stress than it was worth), I remember thinking that I had no idea what I wanted to do next. At that point the only thing I wanted to be was a mom, and that's not exactly the sort of thing you find in the 'help wanted' section. I procrastinated on choosing something, which in the end actually worked out to my benefit.
During and after my time as a nanny, I was going through several evaluations to determine the extent of my psychological needs. I'd been diagnosed with depression since I was 14, but more extensive issues were quickly coming to light. I spent around a month in an intensive outpatient therapy program learning to deal with new diagnoses and coping skills. I'm being completely honest when I say that it's literally the best thing I ever did for myself. But at the same time, suddenly I was able to see how my mental health (or lack thereof, as the case may be) had affected every job I had ever had. I wasn't bad at any of them. I wasn't negligent. But I could have been better.
In those weeks of introspection, I realized that I had been expecting far too much of myself. The thought had never crossed my mind - all I was trying to do was work, hold down a job, which is what everybody does, right? Not too much to expect from myself, especially given my academic record. You grow up, you get a job. It's what you do. It wasn't until my CBT (Cognitive Behavioral Therapy) program that I figured out - all this time I'd been looking for a job, working for a few months and then moving on, I'd already had a job all along, and I hadn't been doing it.
When someone is diagnosed with a serious disease, everyone is quick to assure them that right now, getting better is their job, it's the most important thing. An athlete who suffers a devastating injury goes to physical therapy every day, and that's his job. Nobody would expect a patient of cancer, heart disease, kidney failure, to spend 40 hours a week (or more) wrangling toddlers or filling out needs assessments. It's absurd to think about... imagine your coworker, whoever is in the next cubicle or whatever the case may be, coming into work dragging an IV pole behind him. We'd all say, "Take some time off, take FMLA, you need to focus on getting better right now, that's your job."
So why, then, was I expecting that of myself? How could I, who knew what it was to struggle with mental illness, expect myself and others going through similar trials to just drag our treatment right along with us to work 40 hours a week? How could I expect others like me to work full time jobs while fighting mental illness every single minute of it? I couldn't - I couldn't expect that of others, so I couldn't expect that of myself - and looking back, I saw all the signs that I had been taking on more than I could handle, trying to work a traditional job while I was dealing with so many health issues (be they mental or physical). That was when I had to accept that I was, at least for now, disabled - and as such, my job was to get better.
I took it seriously. I still do. But from the outside I bet it looks like a whole lot of nothing, so today I want to share about my job. It started out similar to most jobs - with someplace to be at 9 am every morning - only the place I had to be was a CBT program, and the work I had to do was on myself. For close to a month I attended that program the way I would have attended school or work, but when it ended, I had to remind myself that I was still doing the job, even though I was now 'working from home'.
There were so many days when I felt useless and broken. There still are. There are days when I realize it's 4:00 pm and I'm still in my pajamas and haven't left the house. There are days when I see family members hard at work sometimes well over 40 hours a week and wonder, what the heck am I doing? I call it "a case of the 'should's". "I should have a normal job." "I should be making money." "I should be doing something with my degree." "I should work as much as my family members." Those are the times I have to remind myself that even though it may not look like it, I'm working as hard as anyone else.
I'm doing my job. I'm getting better - or at least getting through the days. It's hard to explain to anyone who hasn't experienced it themselves (and I wouldn't wish it on anyone), but the amount of work I can do without even getting out of bed is astronomical. Mental illness bombards its victims with constant negativity and distorted thoughts. We wake up thinking "Why even bother getting out of bed?", or "No one cares about me anyways," or "I can't handle life, I should just go back to sleep". We lie there for endless moments searching our consciousness for some shred of evidence to the contrary, something to throw back at those automatic, destructive beliefs. We wake up from terrifying dreams that are all too real and spend hours trying to convince ourselves that we are safe, that this time, it was just a dream. Some days we succeed. Some days we don't.
Every day, that war between such deeply held negative core beliefs, and the healthy ones we are trying to convince ourselves of, rages out of control. Whether I'm lying in bed, volunteering, walking the neighborhood, or cleaning the house, the battle rages, and it drains the energy right out of me no matter what else I'm doing. Some days the bombs are falling so fast that the only thing I can do is take shelter until it's over. Those days, nothing else gets done, but I've still worked all day - just, instead of working on a project or a presentation, I've been working to survive. At the end of the day, if I'm still alive and kicking, I've done my job.
Some days are a little easier. Some days, our minds are prepared for the enemy's onslaught, and we get up, get out of bed, get dressed, maybe even leave the house. Some days we're fighting so hard and with such determination that by the end of the day, we wonder why we can't just accomplish this much every day. And those days are nice, they're a breath of fresh air - but it's easy to fall into the trap of blaming ourselves that not every day is quite so simple. It's easy to wonder, why, if yesterday I cleaned the whole house, washed my car, went to the grocery store and worked a volunteer shift - why am I exhausted before I even get out of bed today? It's because no matter what my body is doing, my mind is fighting that very same war. It's because not every battle can be easily won.
So this is my message for those of you out there who are dealing with mental illness: KEEP FIGHTING THAT WAR! And be kind to yourself. Wherever you are, whatever you're doing, you are doing far more 'work' than even you realize, in every minute - and it's just as important as the work anyone else is doing. Let's stop beating ourselves up for 'not being good enough' and start thinking of ourselves like mental health warriors - slashing through dark jungles the likes of which most people can't even imagine.
And for those of you who have a loved one affected by mental illness, my message to you is this: What you're seeing, what you're observing, is only a tiny fraction of what we're going through. While we might look lazy or unmotivated to you, that battle is raging every minute. Be kind with us, be gentle with us, because after a hard day's work, the one thing we want the most is the love and support of the people around us. To know that whatever we're working through, however the battle may have played out each day, we are not fighting it alone.
You are a very eloquent writer and this post was very well written. I've struggled with some mental health issues as well, and you said a lot of things here that I would have, or needed to but couldn't find the words.
ReplyDeleteI wish you well while you work on this job! I've also just found your blog and read your posts about A. I know that is a difficult topic for you, and I see you never finished your story of us posts. My heart breaks with you for her. I will think of her and you in thought and prayer. My hope is reunification. The system is cruel and unbalanced. You both deserved better (as i can imagine what happened) and I am so very sorry for your loss and hers, but I will believe with you that it was only a "goodbye for now" and that your story will be woven back together soon. I apologize if my comments trigger anything, I really do. I just have to share my heart with you, I hope you understand.
I am sad that if what I believe to be the situation for her, that the system didn't find in her best interest. It so often fails in that regard. They dont know these children. They only see paperwork which is often inadequately put together by inept or apathetic case workers. It makes me sad to think what is being lost now that she doesn't have her advocate and caregiver. I am so very sorry. I don't even know the circumstances, but I from my inferences, I can guess. And I wish there was something I could do to help!
xoxoxo